2000.01EM Genetic Testing
Whereas:
- Advances in genetic research, including the Human Genome Project, allow early identification of individuals likely to develop certain diseases.
- Early identification may lead to successful medical interventions but may also confront individuals with difficult decisions about their future.
- Information from genetic testing, if known to employers, insurance companies, or educational institutions, could result in denial of opportunities or other forms of discrimination.
Resolved:
- The National Council of Women of Canada urges the Government of Canada to pass legislation ensuring:
- (a) Information from genetic testing is available only to the individual tested and their medical advisor, with counseling services provided.
- (b) Access to genetic testing information by others requires the explicit permission of the tested individual.
- (c) Genetic testing results cannot be used as grounds for discrimination.
- (d) Federal privacy legislation is amended to empower individuals to refuse access to their personal genetic information.
- The National Council of Women of Canada urges Provincial Councils of Women to advocate for amending provincial privacy legislation to empower individuals to refuse access to their genetic information.